Wednesday, December 23, 2009

"Tis the Season.....

Earlier in the week Dave told me to save Wednesday night, as he has something planned for us to do but it was a surprise. Rolled my eyes and wondered what he had up his sleeve. He isn't one for planning very many surprises, but when he does, it is a pretty good one! As it turned out, he just had to make sure we were home on Wednesday evening.

So Wednesday night rolls around and I ask him what time we are leaving for our "surprise" and he says about 5:00 - 5:30. O.K. I say, so I am sitting, relaxing and waiting for the time to pass, wondering if we are going to dinner or a movie or if he found something a little different in the newspaper to go and do. So I am reading a book, waiting for time to pass, when I hear the unmistakable sound of live band instruments in our front yard.


So I walk slowly down our hallway and open the front door. Outside, completely covering our front lawn were dozens of people. I was greeted by members of our band, playing Christmas music. Not only was our band there, but others had come to join in as well.


Our choir director was there, with members of choir and other students and staff members as well. They sang while accompanied by the band.

Our band director was there, directing the band, of course!


It took a little bit of organizing between band director and choir director, but they got it together marvelously. I enjoyed every single second of it.


I am watching everyone - and completely overwhelmed. It was cold outside, but I didn't feel any kind of a chill at all until everyone had left. I was so completely and totally overwhelmed at the time that others took from their Holiday celebrations (it is December 23rd for Pete's sake!) to come and share with me. The warmth and love that was there completely melted the chill in the air. I truly didn't feel it at all. (Maybe the Boise folks will scoff at the 50 degree "chill" that was in the air at the time, but coats and thermal underwear were certainly in order for this California gal.)

A few staff members took time from their own Holiday preparations and families to come and join in.

The baseball team was there. Thanks generous Katella parents for sharing your kids with me.


Some of choir was there - one of the girls even wearing her black and purple Knights Fighting Cancer shirt.

Me and the band. Aren't they beautiful????
Of course you will never see anything like this in the newspaper. You don't hear much of love and generosity and giving and kindness in the press or on the news - mostly it is of toys being stolen and hearts being broken at this time of year. If you are lucky enough though, you might be able to experience this feeling of Good Will Toward Men and sharing. It's out there. Proof enough?
Go Knights!
(Of course I will never be able to say "No" to another student or group or club again after I return to work. Last minute requisition? No problem! Need a check yesterday? Here it is!!! )
Love you all! (and thanks again...)







Monday, December 14, 2009

Wonderful Colleagues

As I kind of hinted at in my last post, I was going to tell about "Knights Fighting Cancer".

Below is a photograph I took of a picture that hangs front and center in our family room. Across the bottom it says "Knights Fighting Cancer". In the picture is the Staff at Katella High School, the place where I work. On the matt of the picture are the signatures of those wonderful people at Katella High School.

They all took the time from a staff meeting to do this for me. I can't imagine what it was like to organize over 100 people and get them all up there on time and in some assemblance of order and then all look at the camera at the same time. Aren't they BEAUTIFUL? Then to get them all to individually come in and sign the matt at well. It is so nicely and professionally framed, as you can see, and the little purple ribbon adds a touch of class.

It radiates warmth and love everytime I pass it. It also makes me smile, no matter how difficult that particular day might be.

And speaking of purple. . . . .
After a bit of research by a staff member, it was learned that my particular cancer is symbolized by the color purple. Armed with this infomation, a small movement began. Staff members were asked to wear purple on Wednesdays as a show of support for me or for anyone else that they knew of that was also fighting a battle with cancer. I had no knowledge of this request or of anything else that was going on. I was still working on the first Wednesday this was to happen. I arrived at work and noticed that there was a lot of purple walking around, especially among staff members. I idly wondered about it from time to time but dismissed it just as quickly, too, as mine is a busy office without much time to idly wonder about things. It wasn't until later in the day that I was told what it was all about. I absolutely came apart. Everytime I saw a staff member after that I had to deal with tears of love and gratitude. Then I learned that black tee shirts with purple ribbons printed on them, along with purple bracelets, had been ordered and staff could buy them. If you could see more detail in the picture, you would see that most people are wearing their tee shirts.

The students were talked to in class about cancer and the battle that it was and they too were asked to wear purple if they knew someone who was dealing with it. There was a sweet young girl who put together dozens and dozens of purple ribbons to pass out, just in case anyone had forgotten. I also received a purple IPod with music already on it. It's kind of known that I'm not much of a techie so everything was taken care of for me.

I have received cards in addition, both from people at Katella and people with my job at other schools in the district. They have all truly helped so much.

Aren't I lucky to work with such a wonderful group of people?

GO KNIGHTS!

Sunday, December 6, 2009

DURING.....

So I thought I had hit a wall last time. Little did I know that it was only a speed bump.

Here are a few pictures though. This is the radiation machine. Treatments are generally daily. Will explain that part later. I climb up on the "bed" and lie face down. They move the bed forward and then get me in perfect position by moving me a tad up or down or left or right, usually by just pulling the sheet that is under me.


Then, as you can see in this picture, after I am positioned perfectly, the whole bed raises up and moves forward. That is me, lying on the table. (They have modestly covered me up for my photo shoot!) So I will get a treatment of radiation in this position. It literally takes less than 5 minutes and then they change the position of the machine to get the tumor from a different angle.
It just rolls under me while I stay in the same position. They shoot the radiation beams from this angle, again taking less than 5 minutes. Then they lower the table to it's original position, back it out, and then I scoot down and climb off, returning again in 24 hours to do it all over again. Through this part of the treatment I feel absolutly nothing except how cold it is in that room. I always have a sweatshirt or jacket on under the hospital gown. I'm sure that has nothing to do with the treatment itself - it's just the air conditioning.

At the beginning of this blog I bravely put a "before" picture. Then, I was going to put an "after" picture when things were done. Here is a "during" picture. Not to frighten anyone, but I have seen even worse "during" sites of me in mirrors. Things are progressing though.


I still have enough hair that I can go out in public without worrying about it. I think I am done losing hair now though and it will hopefully thicken up again as new hair grows in. I have finished both of my chemo treatments (2nd one was November 12 - 16) with very very little side effects. I still have the PICC in my arm however. They're just being sure that I won't need any kind of hydration or transfusions before the radiation is over. If so, the PICC is the quickest and most efficient way of administering both.
Originally I was to be done with the radiation on November 25th, the day before Thanksgiving. I had been having daily treatments since October 15th. On the 19th of November (a Thursday)however, I asked my doctor about hospitalization. Skin damage due to radiation was getting very severe. Skin was peeling and seeping and bleeding. Walking was difficult at best, and I began using a wheel chair to get to and from our car and my appointments. Sitting was not a lot better. I found out the true meaning of the word excruciating. I use it to describe what it was like going to the bathroom when the acid from the urine would hit that skin. I couldn't imagine continuing on like this so I asked the doctor about being hospitalized. I imagined being on a constant IV drip for pain while I continued with the treatments (only had five more to go at that point). Instead though, he stopped the treatments for 7 days, and that had two weekends included, so for 11 days I went without radiation so I could heal some. Between all of your prayers and my prayers and the things I learned from reading in the scriptures and the promises of the Atonement I healed enough so that I could begin treatments again on December 2nd. At this writing I only have 2 more treatments to go - Monday the 7th and Tuesday the 8th. Things are going very very well.
I won't go into detail about the pain patches that one wears 24/7, and stronger pain tablets (that one takes in addition to the patches every 4 hours), and salves and ointments and bathroom procedures that often take half an hour. Almost all of that is behind me now though, and as I said, things are going very very well. (If you want details of things I have leanred and discovered to make things a bit more tolerable so that it might posssibly help someone elseI would be glad to share. Give me a call.)
I'll just end this post by saying that we are promised some pretty wonderful things in the scriptures. All we need to do is be aware of them (and of course we become aware of them by reading about them), and then simply ask for thoses blessings.
I have so many things to share. I still need 2-3 naps daily though and can feel a need for one now! Can hardly wait to tell you about Knights Fighting Cancer.
Love and thanks to everyone who has supported me and helped me along this journey.